Open Letter in Response to Media Portrayal of Disabled Persons and Disability Benefit Claimants

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Has anyone tried LDN? Word is this miracle drugs helps all sorts of conditions. I'm interest in trying to find any studies done, or patients with stories. I plan on reading a book about it next week. My PCP really want me to try it. Dr.Komaroff (famous Boston CFS study specialist) claims it didn't help any of his patients. But based on my experiences with him, he tends not to listen to very well(especially if it's not about something he is specifically researching) or suspend much time with you. You talk to his assistant mostly.

I was so completely blown away by my horrible experience with a shitty doctor last week that I even forgot to complain about it here or over in gimp_vent; suffice to say I'm shopping for new doctors and last week's attempt got me a horrible old senile creep who told me there was nothing wrong with me and I needed a psychiatrist. (You'd think that the asthma and chronic bladder infections, which predate the CFIDS, at least counted.... ooh don't get me started.)

So: do any of you happen to know of a decent GP in the San Francisco area? Picking randomly off the insurance list is clearly not going well for me.

Evening all,

We are moving house down towards Mornington/Rosebud way and I want to try and find a new Sleep Doctor to treat my Idiopathic Hypersomnia down there.  We don't want to have to continue driving into the city to visit my current doctor (whom I'm really getting to be less and less impressed with as time goes on).

Can anyone recommend any doctors down that way?

Would be greatly appreciated.

PS: If you'd like to discuss privately please email me at muishkas@gmail.com

A friend of mine e-mailed me. He says that he was talking to a friend of his who "does all kinds of medical research" who says that there has been a breakthrough study about CFS. Apparently, it can be caused by parasites, often the kind you'd become exposed to if you regularly come into contact with cat feces (as I do, because I have two cats).

He says this can be cured through "specific fruit seeds."

Now, this friend is kind of a kook and I have no idea if this friend of his is a doctor or scientist, or why he is doing "all kinds of medical research." I've looked around the web for info on this "breakthrough study" and found only a few references to grapefruit seed extract being a cure-all.

I know the fact that something hasn't hit the mainstream doesn't mean it's nonsense, but have any of you heard anything in the way of a treatment that sounds like this? Any feedback is appreciated.

ETA: I realize that I put "nuts" in the subject lines when the post was about seeds. The brain fog is thick today.

Hi, folks. I made a post which some members might find insightful. I think it's a little too free-form for posting here - (but if mods think I should post it then I will). It contains info relevant to Alzheimers, research, herbs, etc. http://madman101.livejournal.com/1058291.html

(As I mainly spent my entire day on it, I'd just like it to be useful to someone).

ta ta takecare!

To be honest, there is no real purpose in this post beyond the desire to reach out to people who know what I'm going through. I just feel so lonely at the moment. My husband is awesome and he helps all he can but because of my illness and his studies, I scarcely see him. And I don't see anyone else. I'm stuck in a third floor flat and I can't go out because I can't navigate the stairs or walk very far and I have no close friends who live anywhere near here. I'm too tired to talk on the phone, most of the time I'm too tired to type so even instant messaging becomes trying after ten or fifteen minutes. I really just need someone to tell me that it'll get better. Because this is the darkest my illness has ever been and right now I cannot see the light at the end of the tunnel.

Today my specialist suggested graded exercise for the first time.
I've heard both good and bad things about this. 

Would like to hear your opinions and experiences.

What time saving tips do you good folks have related to your daily routines? How do you find they help you manage your symptoms?

Basically, I have ended up somewhat collecting them and am always keen to gather more so here seemed like a good place to ask!